Quality-Of-Life Assessment in Patients on Peritoneal Dialysis: A Review of the State of the Art

S. Salek

Published 1996 in Peritoneal Dialysis International

ABSTRACT

T nterest in assessing psychosocial morbidity and quality of life (QOL) of patients with end-stage renal disease (ESRD) goes back as long ago as three decades with the establishment ofmaintenance hemo dialysis. Over the years, the concept has evolved from a decision-making aid towards an innovative outcome measure. The explosion ofinterest in the assessment ofQOL of patients with ESRD, apart from reasons previously alluded to by Evans (1990) (1), is due to a genuine value placed on a patient's own perception of the impact of disease and treatment on his /her functional behavior (i.e., both physical and psychosocial) and a tendency to adopt a holistic approach. Hence, the development and evolution of the new generation of QOL instruments, the self-administered general QOL measures. Quality-of-life studies in ESRD can be classified into three distinctive eras (1): (1) the early period, 1966 to 1972, when the least amount of empirical work was reported; (2) the middle period, 1973 to 1980; and (3) the contemporary period, 1981 to 1994. It was not until the beginning of the contemporary period that the importance of the quality of life of ESRD patients became apparent. Based on the review of these studies, there appears to be a wide variety of perspectives adopted by different investigators in the assessment of QOL in ESRD patients (1). These range from the psychiatric to rehabilitation medicine, with the psychosocial (i.e., socialpsychological) perspective having the widest coverage, and perhaps more accurately and comprehensively reflecting the quality-of-life indicators. Interestingly, over the years many quality-of-life indicators have emerged from other medical conditions and been adopted by studies of ESRD (e.g., confidence,

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