Inflammatory Bowel Disease Care Barriers and Medication Beliefs in a Majority Hispanic Population: A Patient Survey

Abstract Background Data regarding barriers to inflammatory bowel disease (IBD) care in largely Hispanic populations is limited. This study evaluated barriers in Black/Indigenous/People of Color/Hispanics (BIPOC/H) and White/non-Hispanics (W/NH) with IBD. Methods An anonymous survey was administered to adult IBD patients at Keck Medical Center of the University of Southern California and Los Angeles General Medical Center between March and October 2024. Data included the Consumer Assessment of Healthcare Providers and Systems and Barriers to Care surveys, the Medication Adherence Rating Scale-4, and the Beliefs about Medicines Questionnaire. Analyses compared BIPOC/H and W/NH patients via X2 and t-tests. Results Included were 172 of 195 eligible patients (88% response). Compared to W/NH patients, BIPOC/Hs reported delays of longer than 1 year in receiving a diagnosis, 49.6% versus 27.8% (P = 0.015) more IBD-related financial difficulty, 55.6% versus 22.2% (P = 0.001); more difficulty obtaining emotional support (56.4% vs. 33.3%, P = 0.05); and community support for IBD (45.0% vs. 20.0%, P = 0.004). BIPOC/H patients had higher mean worries about medication harm (13.7 vs. 11.6, P < 0.001), concerns about long-term medication use (17.2 vs. 13.9, P < 0.001), and worries medications are overused (9.0 vs. 7.6, P < 0.002). Specific beliefs, including “medications are toxic” and concerns about dependency, were significantly more prevalent in BIPOC/H respondents (P < 0.05). Conclusions BIPOC/H patients with IBD had more delays in diagnosis, medication-related concerns, IBD-related financial difficulties, and less social/emotional support for their IBD versus W/NHs, underscoring the need for culturally sensitive care, identification and communication of emotional, and community support resources, as well as medication decision support.

• Publication year

  2025

• Venue

  Crohn's & Colitis 360

• Publication date

  2025-10-01

• Fields of study

  Medicine, Sociology

• Identifiers
  DOI 10.1093/crocol/otaf058PMID 41230341PMCID 12604095
• External record

  Open on Semantic Scholar

• Source metadata

  Semantic Scholar, PubMed

• No claims are published for this paper.

• No concepts are published for this paper.

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