Long‐term outcome and quality of life in patients with total colonic aganglionosis in the Netherlands

Total colonic aganglionosis (TCA) is a severe form of Hirschsprung's disease (HD) associated with a high morbidity. This study assessed long‐term functional outcome and quality of life (QoL) of patients with TCA in a national consecutive cohort.

• Publication year

  2018

• Venue

  Colorectal Disease

• Publication date

  2018-08-01

• Fields of study

  Medicine

• Identifiers
  DOI 10.1111/codi.14095PMID 29543374
• External record

  Open on Semantic Scholar

• Source metadata

  Semantic Scholar, PubMed

• No claims are published for this paper.

• No concepts are published for this paper.

• Long-term outcomes

  2018cited by this paper
• Long-term results of the Duhamel technique are superior to those of the transanal pullthrough: A study of fecal continence and quality of life.

  2017cited by this paper
• Psychosexual Well-Being after Childhood Surgery for Anorectal Malformation or Hirschsprung's Disease.

  2015cited by this paper
• Long-term results of total colonic agangliosis patients treated by preservation of the aganglionic right hemicolon and the ileo-cecal valve

  2015cited by this paper
• Adult outcomes after surgery for Hirschsprung's disease: Evaluation of bowel function and quality of life.

  2015cited by this paper
• Surgical outcomes of total colonic aganglionosis in children: A 26‐year experience in a single institute

  2014cited by this paper
• [Quality of life and long term results in Hirschsprung's disease].

  2014cited by this paper
• Hirschsprung disease

  2013cited by this paper
• Open Versus Transanal Pull-Through for Hirschsprung Disease: A Systematic Review of Long-Term Outcome

  2013cited by this paper
• Qualitative analysis of studies concerning quality of life in children and adults with anorectal malformations.

  2013cited by this paper
• Total colonic aganglionosis: a systematic review and meta-analysis of long-term clinical outcome

  2012cited by this paper
• Total colonic aganglionosis in Hirschsprung disease.

  2012cited by this paper
• Long-term outcomes of Hirschsprung's disease.

  2012cited by this paper
• Early and Late Outcomes of Primary Laparoscopic Endorectal Colon Pull-Through Leaving a Short Rectal Seromuscular Sleeve for Hirschsprung Disease

  2011cited by this paper
• Total colonic aganglionosis: a surgical challenge. How to avoid complications?

  2011cited by this paper
• Long-term outcomes and the quality of life of Hirschsprung disease in adolescents who have reached 18 years or older--a 47-year single-institute experience.

  2010cited by this paper
• Bowel Function and Gastrointestinal Quality of Life Among Adults Operated for Hirschsprung Disease During Childhood: A Population-Based Study

  2010cited by this paper
• Comprehensive review of procedures for total colonic aganglionosis.

  2009cited by this paper
• A comparison of the effectiveness of the Soave and Martin procedures for the treatment of total colonic aganglionosis.

  2009cited by this paper
• An 18-year experience in total colonic aganglionosis: from staged operations to primary laparoscopic endorectal pull-through.

  2009cited by this paper
• Long-term clinical outcome in patients with total colonic aganglionosis: a 31-year review.

  2008cited by this paper
• The Association of Coloproctology of Great Britain and Ireland

  2008cited by this paper
• Long-Term Outcome of Total Colonic Aganglionosis

  2008cited by this paper
• Long-Term Results of the Treatment of Total Colonic Aganglionosis with Two Different Techniques

  2008cited by this paper
• Long-term bowel function and quality of life in children with Hirschsprung's disease.

  2008cited by this paper
• Impact of family environment and support on adherence, metabolic control, and quality of life in adolescents with diabetes

  2008cited by this paper
• Total colonic aganglionosis with or without small bowel involvement: a 30-year retrospective nationwide survey in Japan.

  2008cited by this paper
• Long‐term continence after surgery for Hirschsprung's disease

  2007cited by this paper
• Ten-year experience in the management of total colonic aganglionosis.

  2007cited by this paper
• An example of psychological adjustment in chronic illness: Hirschsprung’s disease

  2006cited by this paper
• Total colonic Hirschsprung's disease: a 28-year experience.

  2005cited by this paper
• Long-term outcomes in total colonic aganglionosis: a 32-year experience.

  2005cited by this paper
• Comparison of functional outcomes of Duhamel and transanal endorectal coloanal anastomosis for Hirschsprung's disease.

  2004cited by this paper
• Critical Factors Affecting Quality of Life of Adult Patients With Anorectal Malformations or Hirschsprung's Disease

  2004cited by this paper
• Hirschsprung's disease: functional and psychological follow up comparing total colonic and rectosigmoid aganglionosis

  2002cited by this paper
• Long-term outcome and quality of life after the Swenson procedure for Hirschsprung's disease.

  2002cited by this paper
• Reliability and validity of the child health questionnaire-child form (CHQ-CF87) in a Dutch adolescent population

  2002cited by this paper
• The Dutch version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).

  2001cited by this paper
• Quality of life in patients with anorectal malformation or hirschsprung's disease

  2001cited by this paper
• Self-Administered Questionnaires versus Face-to-Face Interviews in Assessing Sexual Behavior in Young Women

  2000cited by this paper
• Management and long-term follow-up of infants with total colonic aganglionosis.

  1999cited by this paper
• Long-term morbidity in total colonic aganglionosis.

  1998cited by this paper
• The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties.

  1998cited by this paper
• Bowel function, mental health, and psychosocial function in adolescents with Hirschsprung’s disease

  1997cited by this paper
• A comparison on neural net simulators

  1993cited by this paper
• Hirschsprung's Disease.

  year unknowncited by this paper

• Features of defecation dysfunction among patients with Hirschsprung disease in early childhood

  2025cites this paper
• Ernica Clinical Consensus Statements on Total Colonic and Intestinal Aganglionosis.

  2024cites this paper
• Total colonic aganglionosis: management and long-term outcomes at a referral centre

  2024cites this paper
• Long-term outcomes and quality of life in patients with Hirschsprung disease

  2024cites this paper
• Technical Evaluation and Fecal Continence of Laparoscopic-Assisted Procedures for Total Colonic Aganglionosis

  2024cites this paper
• Đánh giá chất lượng cuộc sống của bệnh nhân sau phẫu thuật nội soi cắt toàn bộ đại tràng theo kỹ thuật duhamel tại bệnh viện nhi trung ương giai đoạn 2013 - 2018

  2023cites this paper
• Duhamel Versus Swenson Pull-Through for Total Colonic Aganglionosis: A Multi-Institutional Study.

  2023cites this paper
• Transition Zone Pull-through in Patients with Hirschsprung Disease: Is Redo Surgery Beneficial for the Long-term Outcomes?

  2023cites this paper
• Generic and disease-specific health-related quality of life in patients with Hirschsprung disease: A systematic review and meta-analysis

  2022cites this paper
• Patient-reported outcome measures in pediatric surgery - A systematic review.

  2022cites this paper
• Hirschsprung disease outcomes.

  2022cites this paper
• Patient-reported urinary outcomes in adult males with congenital colorectal conditions

  2022cites this paper
• Changes in postoperative quality of life of pediatric total colonic aganglionosis patients: effect of pull-through technique

  2022cites this paper
• Quality of life outcomes in children after surgery for Hirschsprung disease and anorectal malformations: a systematic review and meta-analysis

  2022cites this paper
• Clinical Efficacy of an Indwelling Transanal Tube for the Prevention of Anastomotic Leakage After Hirschsprung's Disease: A Single Center Experience with Chinese Patients

  2021cites this paper
• Children with congenital colorectal malformations during the UK Sars-CoV-2 pandemic lockdown: an assessment of telemedicine and impact on health

  2021cites this paper
• Perioperative and long-term functional outcomes of neonatal versus delayed primary endorectal pull-through for children with Hirschsprung disease: A pediatric colorectal and pelvic learning consortium study.

  2021cites this paper
• Management and outcomes for long-segment Hirschsprung disease: A systematic review from the APSA outcomes and evidence based practice committee.

  2021cites this paper
• Comparison of long-term outcome according to involved aganglionic segments of total colonic aganglionosis

  2021cites this paper
• Functional Outcomes After Surgery for Total Colonic, Long-Segment, Versus Rectosigmoid Segment Hirschsprung Disease

  2021cites this paper
• Health-Related Quality of Life in Biliary Atresia Patients with Native Liver or Transplantation

  2020cites this paper
• Total colonic aganglionosis: multicentre study of surgical treatment and patient‐reported outcomes up to adulthood

  2020cites this paper
• Total Colonic Hirschsprung's Disease: The Hypermotility and Skin Rash Protocol

  2019cites this paper
• Long-Term Outcome and Quality of Life After Treatment of Hirschsprung’s Disease

  2019cites this paper
• Results of rectoanal manometry after a novel laparoscopic technique: laparoscope-assisted heart-shaped anastomosis for Hirschsprung’s disease

  2019cites this paper
• Hirschsprung Disease

  2009cites this paper
• Enteric physiology, neuropathology, and bowel function following colorectal resections in adults and children

  year unknowninfluential citation