Vivre avec un cancer et d’autres maladies chroniques : perceptions des patients au sujet de leur expérience des soins de santé

On sait que la multimorbidite contribue a la complexite des soins prodigues aux patients atteints de cancer. La presente etude qualitative explore le vecu des patients qui recoivent des traitements multimodaux (traitements pour de multiples maladies chroniques), ainsi que les difficultes pour ces patients a naviguer dans le systeme de soins de sante. Les participants (n = 10) ont ete recrutes dans un centre ambulatoire de cancerologie d’un grand hopital affilie a une universite, a Montreal (province de Quebec). Ils ont rapporte qu’il etait particulierement difficile d’atteindre un juste equilibre entre les besoins de sante aigus et la presence de maladies chroniques persistantes, de vivre des complications imprevues liees au traitement, et d’arriver a pallier le manque de liaison entre les specialites medicales. Les participants auraient egalement souhaite que l’equipe soignante les connaisse mieux. Lorsqu’ils signalaient une experience de coordination des soins positive, les participants l’associaient souvent a l’intervention d’une infirmiere pivot. Finalement, les participants auraient aime que l’approche de soins soit plus personnalisee et qu’ils puissent se joindre aux reunions du comite multidisciplinaire. Les resultats de l’etude soulignent le desir d’ameliorer l’integration des soins entre les maladies, les soins axes sur la personne et le soutien des patients qui cherchent a equilibrer des besoins concurrents en contexte de multimorbidite.

• Publication year

  2017

• Venue

  Canadian oncology nursing journal = Revue canadienne de nursing oncologique

• Publication date

  2017-02-06

• Fields of study

  Not labeled

• Identifiers
  DOI 10.5737/236880762714955PMID 31148793PMCID PMC6516376
• External record

  Open on Semantic Scholar

• Source metadata

  Semantic Scholar, PubMed

• No claims are published for this paper.

• No concepts are published for this paper.

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