Practice parameter: The care of the patient with amyotrophic lateral sclerosis (An evidence‐based review)

No abstract is available for this paper.

• Publication year

  1999

• Venue

  Muscle and Nerve

• Publication date

  1999-08-01

• Fields of study

  Medicine

• Identifiers
  DOI 10.1002/(SICI)1097-4598(199908)22:8<1104::AID-MUS15>3.0.CO;2-2PMID 10417794
• External record

  Open on Semantic Scholar

• Source metadata

  Semantic Scholar, PubMed

• No claims are published for this paper.

• No concepts are published for this paper.

• Transdermal scopolamine in drooling.

  2008cited by this paper
• Nonsurgical treatment of drooling in a patient with closed head injury and severe dysarthria

  2006cited by this paper
• Videofluoroscopic evidence of aspiration predicts pneumonia and death but not dehydration following stroke

  2004cited by this paper
• The association of swallowing dysfunction and aspiration pneumonia

  2004cited by this paper
• Guidelines for telling the truth to cancer patients. Japanese National Cancer Center.

  1998cited by this paper
• Prognostic indicators of survival in ALS

  1998cited by this paper
• Nichtinvasive intermittierende Selbstbeatmung (ISB) als Palliativmaßnahme bei amyotropher Lateralsklerose

  1998cited by this paper
• [Noninvasive intermittent self-ventilation as a palliative measure in amyotrophic lateral sclerosis].

  1998cited by this paper
• Prognostic indicators of survival in ALS. ALS CNTF Treatment Study Group.

  1998cited by this paper
• Midazolam: a review of therapeutic uses and toxicity.

  1997cited by this paper
• Modified barium swallow does not affect how often PEGs are placed after stroke.

  1997cited by this paper
• Good practice in the management of adults with malignant cerebral glioma: clinical guidelines. Working Group, Royal College of Physicians.

  1997cited by this paper
• Preliminary study of glycopyrrolate in the management of drooling

  1997cited by this paper
• Practice advisory on the treatment of amyotrophic lateral sclerosis with riluzole: Report of the Quality Standards Subcommittee of the American Academy of Neurology

  1997cited by this paper
• Effect of upper respiratory tract infection in patients with neuromuscular disease.

  1997cited by this paper
• Preliminary study of glycopyrrolate in the management of drooling.

  1997cited by this paper
• Effect of Noninvasive Positive-Pressure Ventilation on Survival in Amyotrophic Lateral Sclerosis

  1997cited by this paper
• Palliative therapy in the terminal stage of neurological disease

  1997cited by this paper
• Breathing pattern and respiratory mechanics in patients with amyotrophic lateral sclerosis.

  1997cited by this paper
• Pharmacologic treatment of emotional lability.

  1996cited by this paper
• Patients with amyotrophic lateral sclerosis receiving long-term mechanical ventilation. Advance care planning and outcomes.

  1996cited by this paper
• The control of oral secretions in bulbar ALS/MND.

  1996cited by this paper
• Nutritional status of patients with amyotrophic lateral sclerosis: relation to the proximity of death.

  1996cited by this paper
• Interjudge agreement in videofluoroscopic studies of swallowing.

  1996cited by this paper
• Evaluation of the psychological status of ventilatory-supported patients with ALS/MND

  1996cited by this paper
• Breaking Bad News: Starting Palliative Care

  1996cited by this paper
• Does oxygen help dyspnea in patients with cancer?

  1996cited by this paper
• Effects of long-term nocturnal nasal ventilation on spontaneous breathing during sleep in neuromuscular and chest wall disorders.

  1996cited by this paper
• Palliative care in neurology. The American Academy of Neurology Ethics and Humanities Subcommittee.

  1996cited by this paper
• Long-term effects of nasal intermittent positive-pressure ventilation on pulmonary function and sleep architecture in patients with neuromuscular diseases.

  1996cited by this paper
• Home mechanical ventilation for amyotrophic lateral sclerosis: nasal compared to tracheostomy-intermittent positive pressure ventilation.

  1996influential reference
• Glycopyrrolate treatment of chronic drooling.

  1996cited by this paper
• Breaking Bad News: A Review of the Literature

  1996cited by this paper
• Withdrawing life support: extubation and prolonged terminal weans are inappropriate.

  1996cited by this paper
• Acupuncture for the relief of cancer-related breathlessness

  1996cited by this paper
• Analysis of the Pharyngoesophageal Pressure Profile in Amyotrophic Lateral Sclerosis

  1995cited by this paper
• A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT Principal Investigators.

  1995cited by this paper
• Promoting inpatient directives about life-sustaining treatments in a community hospital. Results of a 3-year time-series intervention trial.

  1995cited by this paper
• Breaking bad news: consensus guidelines for medical practitioners.

  1995cited by this paper
• Fairhill Guidelines on Ethics of the Care of People With Alzheimer's Disease: A Clinical Summary *

  1995cited by this paper
• Predictive factors for early mortality after percutaneous endoscopic gastrostomy.

  1995cited by this paper
• Ethnicity and attitudes toward patient autonomy.

  1995cited by this paper
• The discussion about advance directives. Patient and physician opinions regarding when and how it should be conducted. End of Life Study Group.

  1995cited by this paper
• Respiratory assistance with a non-invasive ventilator (Bipap) in MND/ALS patients: survival rates in a controlled trial.

  1995cited by this paper
• Amyotrophic lateral sclerosis: predictors for prolongation of life by noninvasive respiratory aids.

  1995cited by this paper
• Acceptance and perception of percutaneous endoscopic gastrostomy by patients with upper aerodigestive tract cancer.

  1995cited by this paper
• Percutaneous endoscopic gastrostomy and enteral nutrition in amyotrophic lateral sclerosis

  1995cited by this paper
• El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. Subcommittee on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis of the World Federation of Neurology Research Group on Neuromuscular Diseases and the El Escorial "Clinical limits of amyotrophic

  1994cited by this paper
• To breathe or not to breathe

  1994cited by this paper
• Prevention of aspiration pneumonia during long-term feeding by percutaneous endoscopic gastrostomy: might cisapride play any role?

  1994cited by this paper
• Swallowing in motor neurone disease.

  1994cited by this paper
• HealthCare Ethics Forum '94: perspectives on withholding and withdrawal of life-support.

  1994cited by this paper
• El escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis

  1994cited by this paper
• Hospice care in motor neurone disease.

  1994cited by this paper
• Percutaneous endoscopic gastrostomy in patients with amyotrophic lateral sclerosis and impaired pulmonary function.

  1994influential reference
• TRANSDERMAL SCOPOLAMINE FOR REDUCTION OF DROOLING IN DEVELOPMENTALLY DELAYED CHILDREN

  1994cited by this paper
• Respiratory dysfunction in amyotrophic lateral sclerosis.

  1994cited by this paper
• The use of chlorpromazine for symptom control in dying cancer patients.

  1994cited by this paper
• The take-home message: patients prefer consultation audiotapes to summary letters.

  1994cited by this paper
• Review of respiratory care of the patient with amyotrophic lateral sclerosis.

  1994influential reference
• Appropriate Use of Magnetic Resonance Imaging of the Spine and Extremities

  1994cited by this paper
• Assessment of ventilatory function in patients with neuromuscular disease.

  1994cited by this paper
• Mechanical Insufflation-Exsufflation: Comparison of Peak Expiratory Flows With Manually Assisted and Unassisted Coughing Techniques

  1993cited by this paper
• Decision-making in the respiratory care of amyotrophic lateral sclerosis: should home mechanical ventilation be used?

  1993cited by this paper
• Airway obstruction and bronchiolitis obliterans after lung transplantation.

  1993cited by this paper
• Advance directives. Effect of type of directive on physicians' therapeutic decisions.

  1993cited by this paper
• Airway secretion clearance by mechanical exsufflation for post-poliomyelitis ventilator-assisted individuals.

  1993cited by this paper
• Position statement: certain aspects of the care and management of profoundly and irreversibly paralyzed patients with retained consciousness and cognition. Report of the Ethics and Humanities Subcommittee of the American Academy of Neurology.

  1993cited by this paper
• Pulmonary function at diagnosis of amyotrophic lateral sclerosis. Rate of deterioration.

  1993cited by this paper
• Amyotrophic lateral sclerosis. Communication status and survival with ventilatory support.

  1993cited by this paper
• Effects of oxygen on dyspnoea in hypoxaemic terminal-cancer patients.

  1993cited by this paper
• Case studies in terminal weaning from mechanical ventilation.

  1993cited by this paper
• Ethical issues in palliative care: an overview

  1993cited by this paper
• Home ventilation for amyotrophic lateral sclerosis patients

  1993cited by this paper
• Competent patients with advanced states of permanent paralysis have the right to forgo life‐sustaining therapy

  1993cited by this paper
• Relationship of general advance directive instructions to specific life-sustaining treatment preferences in patients with serious illness.

  1992cited by this paper
• Motor neurone disease: a hospice perspective.

  1992cited by this paper
• Ordering and administration of sedatives and analgesics during the withholding and withdrawal of life support from critically ill patients.

  1992cited by this paper
• California Pacific Medical Center

  1992cited by this paper
• Percutaneous endoscopic gastrostomy or jejunostomy and the incidence of aspiration in 79 patients.

  1992cited by this paper
• The efficacy and limitations of percutaneous endoscopic gastrostomy.

  1992cited by this paper
• Randomised comparison of percutaneous endoscopic gastrostomy and nasogastric tube feeding in patients with persisting neurological dysphagia.

  1992cited by this paper
• Laryngeal diversion in the treatment of intractable aspiration in motor neuron disease.

  1992cited by this paper
• LIFE SATISFACTION OF INDIVIDUALS WITH DUCHENNE MUSCULAR DYSTROPHY USING LONG-TERM MECHANICAL VENTILATORY SUPPORT

  1991cited by this paper
• Amyotrophic lateral sclerosis and life-sustaining therapy: patients' desires for information, participation in decision making, and life-sustaining therapy.

  1991cited by this paper
• Letters to patients: improving communication in cancer care.

  1991cited by this paper
• Risk factors for pneumonia after percutaneous endoscopic gastrostomy.

  1990cited by this paper
• USE OF BENZHEXOL HYDROCHLORDE TO CONTROL DROOLING OF CHILDREN WITH CEREBRAL PALSY

  1990cited by this paper
• Poor results with percutaneous endoscopic jejunostomy.

  1990cited by this paper
• EFFICACY OF BENZTROPINE THERAPY FOR DROOLING

  1989cited by this paper
• Pathologic laughter and crying in ALS: a search for their origin

  1989cited by this paper
• Physicians' attitudes on advance directives.

  1989cited by this paper
• Telling the diagnosis of cancer.

  1989cited by this paper
• Starting and stopping the ventilator for patients with amyotrophic lateral sclerosis.

  1989cited by this paper
• Respiratory complications and their management in motor neuron disease.

  1989cited by this paper
• Decisions to withhold or terminate treatment.

  1989cited by this paper
• Role of irradiation in the suppression of parotid secretions

  1989cited by this paper
• Aspiration pneumonia in nursing home patients fed via gastrostomy tubes.

  1989cited by this paper
• Initial Patient Interview

  1988cited by this paper
• Withdrawing Life Support

  1988cited by this paper

• A Preliminary Investigation of Acoustic Features for Remote Monitoring of Respiration in ALS

  2025cites this paper
• Quality of Life of Amyotrophic Lateral Sclerosis Patients in Iran

  2023cites this paper
• Caregivers’ View of Socio-Medical Care in the Terminal Phase of Amyotrophic Lateral Sclerosis—How Can We Improve Holistic Care in ALS?

  2022cites this paper
• Preoperative and Postoperative Care of Patients with Neurologic Disorders

  2021cites this paper
• LUNG FUNCTION AND DYSPNEA IN NEUROMUSCULAR DISEASES

  2021cites this paper
• Amyotrophic Lateral Sclerosis and Noninvasive Positive Pressure Ventilatory Support

  2021cites this paper
• Amyotrophic Lateral Sclerosis, Resistance Training, Endurance Exercise, Tolerance, and Compliance

  2021cites this paper
• Percutaneous Endoscopic Gastrostomy Placement under NIV in Amyotrophic Lateral Sclerosis with Severe Ventilatory Dysfunction: A Safe and Effective Procedure

  2021cites this paper
• The Role of Specialty Palliative Care for Amyotrophic Lateral Sclerosis

  2021cites this paper
• Care at the End of Life

  2021cites this paper
• PRÉFACE ET REMERCIEMENTS

  2021cites this paper
• Metabolic Abnormalities, Dietary Risk Factors and Nutritional Management in Amyotrophic Lateral Sclerosis

  2021cites this paper
• Rehabilitation in Amyotrophic Lateral Sclerosis: Why it Matters

  2021cites this paper
• Obtaining Clinical Improvement in Amyotrophic Lateral Sclerosis with Stabilization of Progressive Functional Loss: Case Report Presentation and Review

  2020cites this paper
• Safety of Gastrostomy Tube Placement in Advanced ALS Patients with Non-invasive Ventilation.

  2020cites this paper
• Gastrostomy and mechanical ventilation in amyotrophic lateral sclerosis: how best to support the decision-making process?

  2020cites this paper
• THE IMPACT OF DYSPHAGIA AND GASTROSTOMY ON QUALITY OF LIFE IN CAREGIVERS OF PATIENTS WITH AMYOTROPHIC LATERAL SCLEROSIS

  2019cites this paper
• Respiratory muscle testing in amyotrophic lateral sclerosis: a practical approach.

  2019cites this paper
• Feasibility of high-resolution manometry for decision of feeding methods in patients with amyotrophic lateral sclerosis

  2019cites this paper
• Evaluation of remote pulmonary function testing in motor neuron disease

  2019cites this paper
• A qualitative study into the communication surrounding the initiation and withdrawal of non-invasive ventilation (NIV) in people with Motor Neurone Disease

  2019influential citation
• A randomized controlled trial of resistance and endurance exercise in amyotrophic lateral sclerosis

  2018cites this paper
• Pulmonary Function Testing in Neuromuscular and Chest Wall Disorders.

  2018cites this paper
• Sleep-related Breathing Disorders

  2018cites this paper
• Sleep Disorders in Neuromuscular Diseases

  2018cites this paper
• Continuous noninvasive ventilation for respiratory failure in patients with amyotrophic lateral sclerosis: current perspectives

  2018cites this paper
• Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

  2017cites this paper
• Motoneuron Disease: Clinical.

  2017cites this paper
• Störung der sensomotorischen Integration bei der Amyotrophen Lateralsklerose

  2017cites this paper
• The top ten: best practice recommendations for aphasia

  2017cites this paper
• Evaluation of Knowledge, Attitude and Perception of Medical, Dental and Pharmacy Students in AIMST University on the Progress of Amyotrophic Lateral Sclerosis (ALS)

  2017cites this paper
• Direct estimation for adaptive treatment length policies: Methods and application to evaluating the effect of delayed PEG insertion

  2017cites this paper
• Morphine for the palliation of dyspnea in patients with amyotrophic lateral sclerosis

  2017cites this paper
• Amyotrophic Lateral Sclerosis: New Suggestions of Pathophysiology and Treatments

  2017cites this paper
• Multidisciplinary Care Improves Survival of Patients with Amyotrophic Lateral Sclerosis in the Unique Health System (SUS) in Brazil

  2017cites this paper
• Diaphragm Dysfunction: Diagnostic Approaches and Management Strategies

  2016cites this paper
• A mapping review of international guidance on the management and care of amyotrophic lateral sclerosis (ALS)

  2016cites this paper
• Assessment and monitoring of ventilatory function and cough efficacy in patients with amyotrophic lateral sclerosis.

  2016cites this paper
• Efficacy of Stem Cell Therapy in Amyotrophic Lateral Sclerosis: A Systematic Review and Meta-Analysis

  2016cites this paper
• Neurologists’ Emotional Experiences in Caring for Individuals With Amyotrophic Lateral Sclerosis: An Exploratory Study

  2016cites this paper
• Schlafmedizin bei Neurodegenerativen Erkrankungen

  2016cites this paper
• Compliance with recommendations made in a multidisciplinary ALS clinic

  2016cites this paper
• High Caloric diets for amyotrophic lateral sclerosis

  2015cites this paper
• Impact of multidisciplinary care in amyotrophic lateral sclerosis hospitalizations in the public health system of Brazil

  2015cites this paper
• Amyotrophic Lateral Sclerosis and Dementia

  2015cites this paper
• Accepting or declining non-invasive ventilation or gastrostomy in amyotrophic lateral sclerosis: patients’ perspectives

  2015cites this paper
• Epidémiologie de la sclérose latérale amyotrophique : Facteurs de risque, incidence et phénotypes

  2015cites this paper
• Nutrition and Amyotrophic Lateral Sclerosis

  2015cites this paper
• Amyotrophic Lateral Sclerosis: New Perpectives and Update

  2015cites this paper
• Nutrition and Survival in Patients with Amyotrophic Lateral Sclerosis

  2015cites this paper
• Cas clinique n° 4 Sclérose latérale amyotrophique

  2014cites this paper
• Body mass index and dietary intervention: implications for prognosis of amyotrophic lateral sclerosis.

  2014cites this paper
• Respiratory and Sleep Diso rd ers in Chronic Neuromuscular Disease , an Update and Therapeutic Approach

  2014cites this paper
• Survival in ALS with home mechanical ventilation non-invasively and invasively: A 15-year cohort study in west Denmark

  2014cites this paper
• Les Passeurs de mots. Une éthique philosophique du soin : à propos d’une enquête nationale au sein des Centres SLA de France

  2014cites this paper
• [Nutritional and metabolic aspects of neurological diseases].

  2014cites this paper
• The Use of Botulinum Toxin Injections to Manage Drooling in Amyotrophic Lateral Sclerosis/Motor Neurone Disease: A Systematic Review

  2014influential citation
• "As you can see, we plod along"; narratives of living with motor neurone disease in Wales

  2014influential citation
• Physical Symptoms in Neurological Conditions

  2013cites this paper
• Outcome of rehabilitation for neurobehavioural disorders

  2013influential citation
• Clinical Practice Guidelines and Practice Parameters for the Child Neurologist

  2013cites this paper
• The effects of lung volume recruitment on coughing and pulmonary function in patients with ALS

  2013cites this paper
• Changes in Tongue Pressure, Pulmonary Function, and Salivary Flow in Patients with Amyotrophic Lateral Sclerosis

  2013cites this paper
• Determinants of accepting non-invasive ventilation treatment in motor neurone disease: a quantitative analysis at point of need

  2013cites this paper
• Absence of Airway Secretion Accumulation Predicts Tolerance of Noninvasive Ventilation in Subjects With Amyotrophic Lateral Sclerosis

  2013cites this paper
• Creatinine/cystatin C ratio as a surrogate marker of residual muscle mass in amyotrophic lateral sclerosis

  2013cites this paper
• The natural history of motor neuron disease: Assessing the impact of specialist care

  2013cites this paper
• Management of amyotrophic lateral sclerosis.

  2013cites this paper
• Quality improvement in neurology: Amyotrophic lateral sclerosis quality measures

  2013cites this paper
• Treatment of respiratory impairment in patients with motor neuron disease in the Netherlands: patient preference and timing of referral

  2013cites this paper
• Rehabilitation of motor neuron disease.

  2013cites this paper
• Augmentative and alternative communication for people with progressive neuromuscular disease.

  2012cites this paper
• Amyotrophic lateral sclerosis : mortality and predictors of survival

  2012cites this paper
• Editor's comment

  2012cites this paper
• Nutrition assessment and management in amyotrophic lateral sclerosis.

  2012cites this paper
• Nutritional Care in Amyotrophic Lateral Sclerosis: An Alternative for the Maximization of the Nutritional State

  2012cites this paper
• The role of a clinical pharmacist in a multidisciplinary amyotrophic lateral sclerosis clinic

  2012cites this paper
• Predictors of emergent feeding tubes and tracheostomies in amyotrophic lateral sclerosis (ALS)

  2012cites this paper
• EBP briefs A scholarly forum for guiding evidence-based practices in speech-language pathology

  2012influential citation
• Nutritional and metabolic support in patients with amyotrophic lateral sclerosis.

  2012cites this paper
• Patient-ventilator asynchrony with nocturnal noninvasive ventilation in ALS

  2011cites this paper
• Association between low sniff nasal-inspiratory pressure (SNIP) and sleep disordered breathing in amyotrophic lateral sclerosis: Preliminary results

  2011cites this paper
• Capnography for Assessing Nocturnal Hypoventilation and Predicting Compliance with Subsequent Noninvasive Ventilation in Patients with ALS

  2011cites this paper
• Home tracheotomy mechanical ventilation in patients with amyotrophic lateral sclerosis: causes, complications and 1-year survival

  2011cites this paper
• Management of amyotrophic lateral sclerosis (ALS) by the family nurse practitioner: A timeline for anticipated referrals

  2011cites this paper
• Summary Technical Report Number 1 – Systematic review and practice recommendations for use of spaced-retrieval training with individuals with dementia. Academy of Neurologic Communication Disorders and Sciences Writing Committee

  2011cites this paper
• Evidence supports metacognitive strategy instruction for particular executive functions in young to middle-aged adults with chronic traumatic brain injury

  2011cites this paper
• Evidence-Based Assessment of Voice Disorders: A Theoretical Overview and Model

  2011cites this paper
• Clinical attention and assistance profile of patients with amyotrophic lateral sclerosis.

  2011cites this paper
• Relevância dos aspectos nutricionais na sobrevida de pacientes com Doença do Neurônio Motor

  2011cites this paper
• A survey of stress among amyotrophic lateral sclerosis care providers

  2011cites this paper
• Noninvasive respiratory muscle aids during PEG placement in ALS patients with severe ventilatory impairment.

  2010cites this paper
• Amyotrophic lateral sclerosis and assisted ventilation: How patients decide

  2010cites this paper
• Profile of Respiratory Impairment in Patients With Amyotrophic Lateral Sclerosis at Initial Admittance

  2010cites this paper
• Open Gastrostomy under Local Anesthesia for Patients with Neuromuscular Disorders

  2010cites this paper
• Nutritional factors associated with survival following enteral tube feeding in patients with motor neurone disease.

  2010cites this paper
• Assessing and predicting successful tube placement outcomes in ALS patients

  2010cites this paper
• ALS with respiratory onset: Clinical features and effects of non-invasive ventilation on the prognosis

  2010influential citation
• A timeline for predicting durable medical equipment needs and interventions for amyotrophic lateral sclerosis patients

  2010cites this paper
• Evaluation of two different methods for per-oral gastrostomy tube placement in patients with motor neuron disease (MND): PIG versus PEG procedures

  2010cites this paper