An Official American Thoracic Society Clinical Practice Guideline: Pediatric Chronic Home Invasive Ventilation.

No abstract is available for this paper.

• Publication year

  2016

• Venue

  American Journal of Respiratory and Critical Care Medicine

• Publication date

  2016-04-15

• Fields of study

  Medicine

• Identifiers
  DOI 10.1164/rccm.201602-0276STPMID 27082538PMCID PMC5439679
• External record

  Open on Semantic Scholar

• Source metadata

  Semantic Scholar, PubMed

• No claims are published for this paper.

• No concepts are published for this paper.

• The Essential Guide for Patient Safety Officers

  2017cited by this paper
• Examining pediatric emergency home ventilation practices in home health nurses: Opportunities for improved care

  2015cited by this paper
• Comentario sobre: Developing services to support parents caring for a technology-dependent child at home

  2014cited by this paper
• Clinical Consensus Statement: Tracheostomy Care

  2013cited by this paper
• Outcomes of Children With Severe Bronchopulmonary Dysplasia Who Were Ventilator Dependent at Home

  2013cited by this paper
• Tracheostomy for Infants Requiring Prolonged Mechanical Ventilation: 10 Years’ Experience

  2013cited by this paper
• Clinical Consensus Statement

  2013cited by this paper
• Ventilator-dependent children and the health services system. Unmet needs and coordination of care.

  2013cited by this paper
• Effect of Leak and Breathing Pattern on the Accuracy of Tidal Volume Estimation by Commercial Home Ventilators: A Bench Study

  2013cited by this paper
• Impact of medical homes on quality, healthcare utilization, and costs.

  2012cited by this paper
• Decreasing accidental mortality of ventilator-dependent children at home: a call to action.

  2012cited by this paper
• Hospital readmissions for newly discharged pediatric home mechanical ventilation patients

  2012cited by this paper
• Integrated complex care coordination for children with medical complexity: A mixed-methods evaluation of tertiary care-community collaboration

  2012cited by this paper
• The Chronically Critically Ill Patient: Pediatric Considerations

  2012cited by this paper
• Thirty years of home mechanical ventilation in children: escalating need for pediatric intensive care beds

  2012cited by this paper
• Health Care Use and Expenditures Associated With Access to the Medical Home for Children and Youth

  2012cited by this paper
• Patient- and Family-Centered Care and the Pediatrician's Role

  2012cited by this paper
• The employment and financial effects on families raising children with special health care needs: an examination of the evidence.

  2012cited by this paper
• Home Care of Children and Youth With Complex Health Care Needs and Technology Dependencies

  2012cited by this paper
• Bench Evaluation of 7 Home-Care Ventilators

  2011cited by this paper
• Associations of Family-Centered Care with Health Care Outcomes for Children with Special Health Care Needs

  2011cited by this paper
• Health information management and perceptions of the quality of care for children with tracheotomy: A qualitative study

  2011cited by this paper
• Risk Factors for Morbidity and Mortality in Pediatric Home Mechanical Ventilation

  2011cited by this paper
• Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care

  2011cited by this paper
• "Fighting the system": Families caring for ventilator-dependent children and adults with complex health care needs at home

  2011cited by this paper
• Integrated complex care model: lessons learned from inter-organizational partnership.

  2011cited by this paper
• Inpatient Health Care Utilization for Children Dependent on Long-term Mechanical Ventilation

  2011cited by this paper
• Home mechanical ventilation: a Canadian Thoracic Society clinical practice guideline.

  2011cited by this paper
• Effect of hospital-based comprehensive care clinic on health costs for Medicaid-insured medically complex children.

  2011cited by this paper
• Association of Family-Centered Care with Improved Anticipatory Guidance Delivery and Reduced Unmet Needs in Child Health Care

  2011cited by this paper
• HEALTH and HUMAN SERVICES

  2010cited by this paper
• Utilization of a second caregiver in the care of a child with a tracheostomy in the homecare setting

  2010cited by this paper
• Outcomes and causes of death in children on home mechanical ventilation via tracheostomy: an institutional and literature review.

  2010cited by this paper
• A home respiratory support programme for children by parents and layperson carers

  2010cited by this paper
• How much do primary care givers know about tracheostomy and home ventilator emergency care?

  2010cited by this paper
• The respiratory management of patients with duchenne muscular dystrophy: A DMD care considerations working group specialty article

  2010cited by this paper
• Guidelines for Non-Invasive and Invasive Mechanical Ventilation for Treatment of Chronic Respiratory Failure*

  2010cited by this paper
• The relationship between home nursing coverage, sleep, and daytime functioning in parents of ventilator-assisted children.

  2010cited by this paper
• The medical home.

  2009cited by this paper
• Analysis of home support and ventilator malfunction in 1,211 ventilator-dependent patients

  2009cited by this paper
• Included but isolated: early intervention programmes provision for children and families with chronic respiratory support needs.

  2008cited by this paper
• Children with new tracheostomies: Planning for family education and common impediments to discharge

  2008cited by this paper
• Chronic Ventilator Need in the Community: A 2005 Pediatric Census of Massachusetts

  2007cited by this paper
• A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs.

  2007cited by this paper
• AARC clinical practice guideline. Long-term invasive mechanical ventilation in the home--2007 revision & update.

  2007cited by this paper
• Consensus Statement for Standard of Care in Spinal Muscular Atrophy

  2007cited by this paper
• The health of caregivers for children with disabilities: caregiver perspectives.

  2007cited by this paper
• Daily Living With Distress and Enrichment: The Moral Experience of Families With Ventilator-Assisted Children at Home

  2006cited by this paper
• Hospital Discharge of Respiratory-Technology-Dependent Children: Role of a Dedicated Respiratory Care Discharge Coordinator

  2006cited by this paper
• An official ATS statement: grading the quality of evidence and strength of recommendations in ATS guidelines and recommendations.

  2006cited by this paper
• Impact of a child's chronic illness on maternal sleep and daytime functioning.

  2006cited by this paper
• MENTAL HEALTH OF MOTHERS CARING FOR VENTILATOR-ASSISTED CHILDREN AT HOME

  2006cited by this paper
• Tracheostomy care in the home.

  2006cited by this paper
• Performance of mechanical ventilators at the patient’s home: a multicentre quality control study

  2006cited by this paper
• [Education of the families of patients receiving domiciliary ventilation].

  2005cited by this paper
• Information des familles des patients recevant une ventilation à domicile

  2005cited by this paper
• Families' experiences of caring for technology-dependent children: a temporal perspective.

  2005cited by this paper
• Quality control of equipment in home mechanical ventilation: a European survey

  2005cited by this paper
• [Care for children with tracheostomy].

  2005cited by this paper
• Enhancing Collaboration Between Primary and Subspeciality Care Providers for Children and Youth with Special Health Care Needs

  2005cited by this paper
• ventilation: pitfalls and outcomes Sending children home on tracheostomy dependent

  2005cited by this paper
• Parental experience of services when their child requires long-term ventilation. Implications for commissioning and providing services.

  2004cited by this paper
• The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers?

  2004cited by this paper
• Unmet need for therapy services, assistive devices, and related services: data from the national survey of children with special health care needs.

  2004cited by this paper
• Respiratory care of the patient with Duchenne muscular dystrophy: ATS consensus statement.

  2004cited by this paper
• Policy statement: organizational principles to guide and define the child health care system and/or improve the health of all children.

  2004cited by this paper
• The medical home.

  2002cited by this paper
• Home ventilator low-pressure alarms fail to detect accidental decannulation with pediatric tracheostomy tubes.

  2001cited by this paper
• Psychosocial Problems Arising from Home Ventilation

  2001cited by this paper
• Care of the child with a chronic tracheostomy. This official statement of the American Thoracic Society was adopted by the ATS Board of Directors, July 1999.

  2000cited by this paper
• American Academy of Pediatrics. Committee on Children With Disabilities. Care coordination: integrating health and related systems of care for children with special health care needs.

  1999cited by this paper
• The experiences and views of parents who care for ventilator-dependent children.

  1999cited by this paper
• Core guidelines for the discharge home of the child on long term assisted ventilation in the United Kingdom

  1998cited by this paper
• A New Definition of Children With Special Health Care Needs

  1998cited by this paper
• Safety of hospitalized ventilator-dependent children outside of the intensive care unit.

  1998cited by this paper
• Effects of pediatric chronic physical disorders on child and family adjustment.

  1998cited by this paper
• Part 2: using a competency-based curriculum to train experienced nurses in ventilator care.

  1996cited by this paper
• Tracheostomy care: preparing parents for discharge.

  1992cited by this paper
• Home Mechanical Ventilation of Pediatric Patients

  1990cited by this paper
• Home mechanical ventilation of pediatric patients. American Thoracic Society.

  1990cited by this paper
• Preparing the family for home tracheotomy care.

  1990cited by this paper
• Marital adjustment to chronic childhood illness: a critique of the literature.

  1984cited by this paper
• HOME MECHANICAL VENTILATION IN PEDIATRIC PATIENTS

  1983cited by this paper

• Basics of Mechanical Ventilation for the Outpatient Pediatrician.

  2026cites this paper
• Outcomes of children after initiation of home mechanical ventilation via tracheostomy: a single center retrospective study.

  2026cites this paper
• Parents' Perceptions of Delays and Disabilities in Their Children Requiring Invasive Mechanical Ventilation

  2026cites this paper
• Clinical applications of home mechanical ventilation in children

  2025cites this paper
• Communication behaviors of nurses and parent dyads of hospitalized home ventilator dependent children: A qualitative study.

  2025cites this paper
• Outcomes of Children With Tracheostomy Before and After Implementing Caregiver Simulation‐Based Tracheostomy Education

  2025cites this paper
• Home Health Care of Children, Adolescents and Young Adults With Complex Medical Needs: Clinical Report.

  2025cites this paper
• Hilfsmittelversorgung häuslich beatmeter Kinder aus Elternsicht

  2025cites this paper
• Navigating Recommendation Versus Reality: Considering Social Determinants of Health in Discharge and Outpatient Management of Children Requiring Home Mechanical Ventilation

  2025cites this paper
• Équité, lignes directrices et appareils respiratoires

  2025cites this paper
• Time Toxicity: Quantifying Healthcare Utilization Attributable to Pediatric Home Ventilation

  2025cites this paper
• Experiences and Educational Needs of Hospital Staff Providing Care to Tracheostomy-Dependent Pediatric Patients

  2025cites this paper
• Handlungsoptionen bei der Verordnung außerklinischer Intensivpflege und Potenzialerhebung bei Kindern und Jugendlichen

  2025cites this paper
• Equity, guidelines, and respiratory devices

  2025cites this paper
• Hospital to home transition of children with medical complexities in the Netherlands: current practice

  2025cites this paper
• ATS Pediatric Core Curriculum 2024: The Role of the Pediatric Pulmonologist in the Intensive Care Unit

  2025cites this paper
• Opportunities to Improve Care Processes for Ventilator-Dependent Children: A Single-Center Study.

  2025cites this paper
• Safe Enough: Subjective Determinations in Hospital Discharge for Patients With Medical Complexity.

  2025cites this paper
• Home mechanical ventilation: a narrative review and a proposal of practical approach

  2025cites this paper
• Care of Infants and Children with Tracheostomies: An Official American Thoracic Society Clinical Practice Guideline

  2025cites this paper
• Development and Use of Home Ventilators for Pediatric Care

  2025cites this paper
• The Impact of the Lack of Access to Home Health Nursing on Families of Children with Medical Complexity in the United States.

  2025cites this paper
• The Impact of COronaVIrus Disease of 2019 Pandemic on Home Health Nursing Availability in Pediatric Patients After Tracheostomy Placement

  2025cites this paper
• Readmission and mortality among children requiring long-term mechanical ventilation via tracheostomy: a systematic review

  2025cites this paper
• Modifiable and Non‐Modifiable Risk Factors for Tracheostomy in Preterm Infants

  2025cites this paper
• Home Health Care Research for Children With Disability and Medical Complexity.

  2025cites this paper
• Prevention of chronic pneumonia in children with severe motor and intellectual disabilities by long-term tobramycin inhalation: Its benefits and limitations.

  2025cites this paper
• Discharge Practice Variability in Pediatric Chronic Home Invasive Ventilation

  2025cites this paper
• Weaning strategies for children on home invasive mechanical ventilation

  2024cites this paper
• Discharge barriers for children requiring long‐term invasive mechanical ventilation: Practical experiences from pediatric home ventilation programs across the southeastern United States

  2024cites this paper
• Family caregivers of children transitioning hospital to home receiving nasogastric feeding: descriptive qualitative study

  2024cites this paper
• Research on Family-Centered Care in pediatric patients: A Bibliometric Analysis.

  2024cites this paper
• Healthcare service use and medical outcomes of tracheostomy-dependent children: a nationwide study

  2024cites this paper
• Lived experiences of caregivers with infants treated at home with continuous invasive or noninvasive ventilation

  2024cites this paper
• Management of respiratory problems in children on home invasive mechanical ventilation

  2024cites this paper
• Transitioning children using home invasive mechanical ventilation from hospital to home: Discharge criteria, disparities, and ethical considerations

  2024influential citation
• The Role of Specialists in Care Integration: A Primary Responsibility.

  2024cites this paper
• School adjustment experiences of ventilator-dependent children: A phenomenological study of mothers' perspectives.

  2024cites this paper
• Transitioning medically complex infants home: lessons learned from quality improvement efforts

  2024cites this paper
• Mapping health-related quality of life of children and families receiving pediatric invasive home mechanical ventilation: a scoping review protocol

  2024cites this paper
• Low-Resource Hospital Days for Children Following New Tracheostomy.

  2024cites this paper
• Monitoring of physiologic features and treatment aspects of children on home invasive mechanical ventilation

  2024influential citation
• Implementation of a high fidelity simulation based training program for physicians of children requiring long term invasive home ventilation: a study by ISPAT team

  2024cites this paper
• Follow-up of the preterm NICU graduates

  2024cites this paper
• Family Caregiver Knowledge in the Outpatient Management of Pediatric Tracheostomy-Related Emergencies

  2024cites this paper
• Education program for caregivers in congenital central hypoventilation syndrome: Initiation and experience families

  2024cites this paper
• Medical and social factors associated with prolonged length of stay for chronically ventilated children

  2024cites this paper
• Rehabilitation in children with home invasive mechanical ventilation

  2024cites this paper
• Home Health Nursing Agencies' Services for Children with Medical Complexity: Parent and Nurse Perspectives.

  2024cites this paper
• Indications and practice of home invasive mechanical ventilation in children

  2024cites this paper
• Factors associated with liberation from home mechanical ventilation and tracheostomy decannulation in infants and children with severe bronchopulmonary dysplasia

  2024cites this paper
• Notfallpläne zum Management von Notfällen bei Kindern mit außerklinischer Beatmung

  2024cites this paper
• Types of home respiratory support in children with bronchopulmonary dysplasia and factors determining its duration: A scoping review

  2024influential citation
• Home ventilator alarm function in simulated decannulation with pediatric‐sized tracheostomy tubes

  2024cites this paper
• Healthcare Utilization and Costs in Children Receiving Home Mechanical Ventilation in Ontario: A 14-Year Cohort Study.

  2024cites this paper
• Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review

  2024cites this paper
• Ventilator‐associated respiratory infections in children on home invasive mechanical ventilation

  2024cites this paper
• Causes and management of urinary system problems in children on long‐term home invasive mechanical ventilation

  2024cites this paper
• Incidence, outcome, and prognostic factors of prolonged mechanical ventilation among children in Chinese mainland: a multi-center survey

  2024cites this paper
• Tracheostomy and long‐term invasive ventilation decision‐making in children: A scoping review

  2024cites this paper
• Parent perspectives on education to support hospital discharge for children with invasive mechanical ventilation.

  2024cites this paper
• S3-Leitlinie: Nichtinvasive Beatmung als Therapie der chronischen respiratorischen Insuffizienz

  2024cites this paper
• Codesign of remote data collection for chronic management of pediatric home mechanical ventilation

  2023influential citation
• Tracheostomy in Severe Bronchopulmonary Dysplasia—How to Decide in the Absence of Evidence

  2023cites this paper
• The care burden for technology-dependent children with long-term home ventilation increases along with the improvement of their motor functions

  2023cites this paper
• Long-term home mechanical ventilation using a noninvasive ventilator via tracheotomy in patients with myasthenia gravis: a case report and literature review

  2023cites this paper
• Management of gastrointestinal and nutritional problems in children on home invasive mechanical ventilation

  2023cites this paper
• Risk of Obstructive Sleep Apnea in Saudi Male Boys with Duchenne Muscular Dystrophy (DMD)

  2023cites this paper
• Incidence and Mortality of Children Receiving Home Mechanical Ventilation.

  2023cites this paper
• Primary ciliary dyskinesia diagnosis and management and its implications in America: a mini review

  2023influential citation
• Respiratory management of established severe bronchopulmonary dysplasia.

  2023cites this paper
• Sleep Quality of Family Caregivers of Children With Tracheostomies or Home Ventilators: A Scoping Review

  2023cites this paper
• Palliative care for NICU survivors with chronic critical illness.

  2023cites this paper
• Parents' experiences of their children's medical journeys with tracheostomies: A Focus Group Study.

  2023cites this paper
• The follow‐up of children on home invasive mechanical ventilation after hospital discharge

  2023cites this paper
• Decision-Making and Ethical Considerations of Tracheostomy and Chronic Mechanical Ventilation in Children With Acute Neurological Injury.

  2023cites this paper
• Domiciliary management of infants and children with chronic respiratory diseases.

  2023cites this paper
• Utilization of Training Dolls to Enhance Caregiver Education for Pediatric Tracheostomy Care

  2023cites this paper
• Home-Based Emergency Preparedness for Families of Children and Youth With Special Healthcare Needs: A Scoping Review

  2023cites this paper
• Infrastructure- and workforce capacity for the provision of health care to people with invasive home mechanical ventilation: A scoping review of indicators and norms.

  2023cites this paper
• Tracheostomy in infants with severe bronchopulmonary dysplasia: A review

  2023cites this paper
• Long-term sleep apnea CPAP via tracheostomy in children with tracheomalacia: 20-year experience

  2023cites this paper
• Long-term mechanical ventilation and transitions in care: A narrative review

  2023cites this paper
• Respiratory Outcomes for Ventilator-Dependent Children With Bronchopulmonary Dysplasia.

  2023cites this paper
• Predictors for invasive home mechanical ventilation duration in bronchopulmonary dysplasia

  2023cites this paper
• Family-Reflections.com: Creating a parent-to-parent web-based tool regarding pediatric home ventilation.

  2023cites this paper
• Going home: Clinician perspectives on decision‐making in paediatric home mechanical ventilation

  2023cites this paper
• To trach or not to trach? Ethical considerations for medically complex children during a home nursing crisis

  2023cites this paper
• Management of neurological problems in children on home invasive mechanical ventilation

  2023cites this paper
• Caregiver education before hospital discharge for children on home‐invasive mechanical ventilation

  2023influential citation
• Multidisciplinary bronchopulmonary dysplasia care

  2023cites this paper
• Arrangement of residence before hospital discharge for children on home‐invasive mechanical ventilation

  2023cites this paper
• Home ventilation in low resource settings: Learning to do more, with less

  2023cites this paper
• Magic Mothers: How Parents of Children with Invasive Mechanical Ventilation Can Make Health System Crises Disappear

  2023influential citation
• Clinical characteristics and outcomes of children with prolonged mechanical ventilation in PICUs in mainland China: A national survey

  2023cites this paper
• Home health nurses for children with invasive mechanical ventilation (IMV): Perspectives on gaps and opportunities for recruitment.

  2023cites this paper
• Psychosocial factors affecting the quality of life of parents who have children with home mechanical ventilation

  2023cites this paper
• To Trach or Not To Trach: Long-term Tracheostomy Outcomes in Infants with BPD.

  2023cites this paper
• Home mechanical ventilation in children with chronic respiratory failure: a narrative review

  2022cites this paper
• Improving Homecare Risk Management and Patient Safety

  2022cites this paper