Perceived Discrimination, Patient Trust, and Adherence to Medical Recommendations Among Persons with Sickle Cell Disease

No abstract is available for this paper.

• Publication year

  2014

• Venue

  Journal of general internal medicine

• Publication date

  2014-09-10

• Fields of study

  Medicine

• Identifiers
  DOI 10.1007/s11606-014-2986-7PMID 25205621PMCID PMC4242876
• External record

  Open on Semantic Scholar

• Source metadata

  Semantic Scholar, PubMed

• No claims are published for this paper.

• No concepts are published for this paper.

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  2012cited by this paper
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  2010cited by this paper
• Problematic Hospital Experiences among Adult Patients with Sickle Cell Disease

  2010cited by this paper
• Population estimates of sickle cell disease in the U.S.

  2010cited by this paper
• Examining the Effectiveness of Hydroxyurea in People with Sickle Cell Disease

  2010cited by this paper
• The relative merits of risk ratios and odds ratios.

  2009cited by this paper
• Treatment of sickle cell pain: fostering trust and justice.

  2009cited by this paper
• The number of people with sickle‐cell disease in the United States: national and state estimates

  2009cited by this paper
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  2009cited by this paper
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  2009cited by this paper
• A systematic review of barriers and interventions to improve appropriate use of therapies for sickle cell disease.

  2009cited by this paper
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  2009cited by this paper
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  2007cited by this paper
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  2006cited by this paper
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  2005cited by this paper
• Development of abbreviated measures to assess patient trust in a physician, a health insurer, and the medical profession

  2005cited by this paper
• Adherence to medication.

  2005cited by this paper
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• DIVERSE COMMUNITIES, COMMON CONCERNS: ASSESSING HEALTH CARE QUALITY FOR MINORITY AMERICANS FINDINGS FROM THE COMMONWEALTH FUND 2001 HEALTH CARE QUALITY SURVEY

  2002influential reference
• Disorders of Hemoglobin, Genetics, Pathophysiology and Clinical Management.

  2001cited by this paper
• Methods for measuring and monitoring medication regimen adherence in clinical trials and clinical practice.

  1999cited by this paper
• Experiences of hospital care and treatment seeking for pain from sickle cell disease: qualitative study

  1999cited by this paper
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  1994cited by this paper
• The management of sickle cell crisis pain as experienced by patients and their carers.

  1994cited by this paper
• Metered-dose inhaler adherence in a clinical trial.

  1992cited by this paper
• The moderator-mediator variable distinction in social psychological research: conceptual, strategic, and statistical considerations.

  1986cited by this paper
• Can Simple Clinical Measurements Detect Patient Noncompliance?

  1980cited by this paper

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• Prudent Physician Anger in Patient-Physician Interactions

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• Using a Community-Engaged Research Approach to Prioritize Self-Management Needs of Adults with Sickle Cell Disease

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• Sickle Cell Journeys: Healthcare Providers at the Front Lines

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• Impact of disease- and race-based discrimination in healthcare on pain outcomes among adults living with sickle cell disease in the United States: The mediating roles of internalized stigma and depressive symptoms.

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• Group-based medical mistrust in genomic medicine: Associations with patient and provider perceptions of a specialty clinical encounter.

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• Perceptions of Care and Perceived Discrimination: A Qualitative Assessment of Adults Living with Sickle Cell Disease

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• A Winding Road to Health Care Equity in Sickle Cell Disease.

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• Health Supervision for Children and Adolescents With Sickle Cell Disease: Clinical Report.

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• Too close for comfort: leveraging identity-based relevance through targeted health information backfires for Black Americans.

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• The relationship of perceived discrimination in healthcare and future falls among community-dwelling older persons from an English longitudinal cohort

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  2023cites this paper
• Psychiatric comorbidities in adults with sickle cell disease: A narrative review

  2023cites this paper
• Patient perceptions of microaggressions and discrimination toward patients during emergency department care

  2023cites this paper
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  2023cites this paper
• Illness Intrusiveness in Adults with Sickle Cell Disease: The Role of Fatigue

  2023cites this paper
• Use of Person-Centered Language Among Scientific Research Focused on Sickle Cell Disease.

  2022cites this paper
• Confronting Racism in Pain Research: A Call to Action.

  2022cites this paper
• U.S. Health Resources & Services Administration

  2022cites this paper
• Knowledge and attitudes of nurses toward sickle cell disease patients in Jazan

  2022cites this paper
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• Association between COVID-19 vaccine hesitancy and trust in the medical profession and public health officials

  2022cites this paper
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